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15 November 2007 @ 10:11 am
 

HAPPY BIRTHDAY [info]blowtorch_betty



You're strong, beautiful and I feel lucky to call you a friend. I think back to when we first met at Urban Outfitters and I am stunned by the journey life has taken us both on. Rock fucking on girl.
 
 
29 October 2007 @ 01:10 pm
An unsettling dream...  

I had a disturbing dream a few weeks ago that I haven't been able to get out of my head. I'm going to write it down.


It is a bright day, sunny and warm. I am sitting in a large SUV type vehicle with a group of other people. I don't recognize any of them but it does not feel unusual to be grouped with them. I'm sitting in the front passenger seat of the car but I'm facing the rear of the vehicle. We're parked in a large square next to a tall, glass building. Somewhere in the background, a man is lecturing and we are listening to him. 

Suddenly, a girl in the car jumps out of the car and runs into the building. The man lecturing makes some remark about how she "must already know all she needs" and we all understood she was running because of something she had seen in the building. We're looking up and see lights flickering on one of the floors in the building. Barely seconds have gone by and then, so quickly, before anyone has a chance to look elsewhere,  a woman comes leaping out of the building from the floor above the flickering lights and plunges to the pavement. It happened quickly but I can recall every detail about her fall. She was wearing a long, full, brown skirt and a cream colored top. She had a hippy-like quality to her dress and had colorful scarves and beaded necklaces wrapped around her neck. She was carrying an army green canvas bag that was across her shoulders. She had shoulder length brown hair and the most peaceful and serene smile on her face I've ever seen. I turned my head just before she landed.

She hit the pavement hard and only a few feet from where we were parked. The window of the vehicle was open and her blood splashed inside and onto my arms and the side of my face. I spent a few minutes paralyzed, covering the left side of my face with my arm so as to not see her body on the ground. I kept picturing how it looked though so although the image wasn't technically something I was looking at, it was visible to me. 

I woke up, feeling terrified and still trying to shield my eyes. 






 
 
09 September 2007 @ 11:01 pm
Dang - where does the time go...  
I'm finding it hard to believe that it's September already. I suppose now is as good a time as any to provide whomever stumbles upon my journal a wee bit of an update. I'll keep it brief since I'm a) embarassingly hungover b) in India and it's late and c) working on a nice percoset coma that will probably render any thoughts in my head a little useless.

So with that, here's what's up:

- Went to Jamaica in June for a "grown-up" vacation. No family, no kids. Just me, John, books, beach and rum for 10 days. Loved it.
- Finally achieved silver status with BA, meaning I have a slightly higher than 0% chance of getting upgraded on my trips to India.
- Looking at moving to Denver. Boston is dreary, mountains are awesome, houses are cheaper. Nuff said.
- Tons of work stuff but since this journal is published in areas that allow workfolk find it and read it, I recognize I'll need to be a bit more selective about what I write so as not to find myself dooced.  I may or may not choose to do more writing that will be friends only. I guess the only way YOU'LL be able to find out is if you get an account and I add you as a friend.
- Oh, and just to clear up the percoset coma comment, I have a herniated disc in my neck that manages to keep me in a constant state of discomfort. Really, that's all it is.

Aaanyhow, like I said, keeping it brief tonight as that stiff, uncomfortable excuse for a bed is calling to me. Also, because I'm genuinely curious to know if anyone is out there listening, drop a comment when you come visit. It may even guilt me into writing more often.





 
 
19 January 2007 @ 07:20 pm
Status = Not Dead  
But I don't have anything to say right now either. Work is super busy, yadda, yadda, yadda. But I'm doing well...I think. :)

If nothing else, I finally got off my arse and posted some pictures from India (or more to the point, got on my arse and sorted through some of them).

All pictures are public and since I still haven't quite figured out how to post them here in a post well, you'll have to surf over to http://pics.livejournal.com/rubyred660/gallery/0001w738 to see them yourself!
 
 
25 November 2006 @ 07:19 pm
Faking it  
I have a confession to make.

I am not happy about my 6 month check up test results. Don't get me wrong, I'm not sad about them or anything. But let's just be clear, when you ask me how I'm doing and I tell you "good" what I add in my head every time is "for now". And this does not feel morbid to me. It just feels like reality. That's the thing with cancer I guess. You're fine until the day you aren't.

My family, my friends, even co-workers are all so happy about my 6 month test results. Like it's some kind of "win" in the fight. It's not guys. It's not anything to celebrate. It doesn't give me any kind of comfort to hear that my test results show no evidence of disease. Because CT scans from this exact time last year didn't show evidence of disease either and yet it was there. And my blood never had any tumour markers so we don't even discuss my CA 125 levels as a meaningful testing tool. So all I have is a scan that shows I don't have any more large growths in my body. And I'm glad for that, I am. But I'm not breathing any sighs of relief here. I'm glad I'm fine right now. I'm glad I don't have anything visible to worry about. But when you hug me and squeal with delight over my test results, I'm faking it when I smile back and agree about how great it is.
 
 
17 November 2006 @ 05:57 pm
Happy Birthday NED!  
Yesterday was my 29th birthday. It was also the date of my 6 month check up with my oncologist. I was a little nervous scheduling it 3 months ago but felt confident I would have good news...and I did. :) My 6 month mark scans were clean and everything looks good. I have some pesky bleeding issues so we are going to do a uterine biopsy in the next few weeks just to be safe. I'm sure it will be fine but as my doctor reminds me, we've thought that before and been wrong so we might as well go the extra mile.

So I'm back from India, I'm older and I'm free of disease.

That's my update for now.

PS - there are a lot of people out there that I'm not doing a very good job of staying in touch with. I'm sorry. I'm having problems making time for myself these days (sort of took the whole "throw yourself back into life" think a little too seriously and I'm way overwhelmed at work) and it's impacting personal relationships which is NOT my intention. I need to do a better job here. To the friends I haven't talked to in awhile, I miss you, I love you and I think of you often. Please bear with me while I figure out how to be a better friend.
 
 
05 November 2006 @ 01:26 pm
So annoying!  
I had just half typed out a lovely post and then my mouse went haywire, clicked me back 5 pages and byebye posty. :(

Where was autosave when I needed it?


Argh, so annoying too because I see LJ just autosaved this TWO SECOND post.


sheesh.
 
 
27 September 2006 @ 10:56 pm
present and accounted for  
This will probably be short. Not for lack of things to say but for apparent lack of interest in saying them. For some reason, I've found myself able to make many excuses for not spending time in my journal chronicling my innermost thoughts. I'm not exactly sure why but at least part of it is sheer overwhelming workload which has kind of consumed my life in the past few months. Or at least that is what I am telling myself.

Here are a few of things that have been swirling in my mind:

I have hair again. It's like being a different person. I resented it being gone and I resented it growing back. People looked at me like I was trying to be some kind of new radical with my budding crew cut. It pissed me off more than the fake sympathy smiles I would get as a pure baldy. At least those had good intentions.

The 7th anniversary of my mom's death was August 9th. 7 years. But it doesn't matter. 1 year, 5 years, 7 or 20. She's still as dead as she ever was and it still sucks. I had some really painful dreams about her this summer. Vivid, gut wrenching, emotional dreams where she was still alive but about to get the phone call that would tell us nothing was ever going to be ok again and feeling that hurt and fear of what was coming next all over again.

I had my three month check up, it was uneventful. Ct scans and ultrasounds await me in November.

India was amazing and I need to still sort through my pictures. I'm going back in a month. I should really get the photos from the first trip posted before I go. :)


My journal always ends up feeling kind of angry and bitter but actually things are going really well right now. Work is busy, stressful but in that energizing kind of good way. John and I are doing really well despite some rocky patches in the spring. We spent a lot of time together this summer having FUN again. Go figure. :)

Louise - thank you for poking me. It's good to feel worried about even if we'd all rather not have the reason to worry.
 
 
11 July 2006 @ 06:48 pm
My misadventures in Agra  

Sunday was the big day. It had been planned all week. We were going to Agra. We were going to see the 7th wonder of the world, the Taj Mahal. Now for the most part, people choose to drive to Agra which is about 4 hours by car. John had already made this drive once and said it was way too hot and uncomfortable to do again. He wanted to take the train which is only 2.5 hours. No problem, I said. What did I know...

I arranged for the train tickets and for a driver and guide to pick us up in Agra that would take us around to see Fatehpur Sikri (an abandoned city about 26 miles west of Agra), the Red Fort of Agra and, of course, the Taj. They also took us around to some of the local markets where, somehow, 7 pairs of shoes were mysteriously purchased by John and I (3 for him, 4 for me - I regret nothing!).

The day started early (5 am) as our train left Delhi at 6:15. We arrived to the bustling chaos of New Delhi Train Station, found our platform and waited patiently for our train to arrive amidst the families eating breakfast on blankets around us. The train ride itself was uneventful...I did notice it had started to rain about halfway through to Agra but tried not to worry about that even though the Monsoon was scheduled to hit any time now. Upon arrival in Agra though, the polite drizzle of the rain on the train had turned into fat bastards of rain drops plopping itself every which way. We found our driver and shloshed off to meet our guide. We stopped briefly at a restaurant where I was invited to try what was easily the worst tea I've ever been near in my life. We moved on quickly.

So it was off to Fatehpur Sikri. It was a longish drive through very rural India. Pictures are hard to take here and honestly, words can't describe to you what the eyes see. Poverty unlike anything I've witnessed and living conditions that run a shiver up your spine.  The rain continued to come down. I'll post pictures of everything we saw when I get home (I forgot one of my cables so I can't download from my camera). From there we went to the Agra fort and then it was time for lunch. I'll admit to feeling tremendous guilt here. We had just spent the past 3 hours driving through some of the worst living conditions I had ever seen. Water to your knees, piles of trash floating through the roads, children playing in the same water and animals...EVERYWHERE.  So when we walked into the squeaky clean conditions of the beautiful Oberoi hotel that stands just 600m from the Taj...it was hard to reconcile it with the images we'd just seen.

We made it to the Taj after lunch and had waited long enough for the rain to stop. It was everything you think it is and nothing at the same time. From afar it's breathtaking and it gives you that "holy shit I'm looking at the Taj Mahal" feeling you would expect. But I'll be honest, the closer you walk to it, the less impressive it becomes. Its ethereal quality starts to wan the closer you get to the actual building itself. Once you are standing right in front of it, it doesn't have that same kind of awe-inspiring, drop-to-your-knees thing that would make you wipe tears from your eyes and say "yes, THIS is a wonder of the world." Maybe I'm just cynical. Maybe I was still thinking about that naked two year old I had just seen within 10 ft of a leaking raw sewage truck.

Far be it for me to let my witness to extreme poverty take away my taste for shopping though, because after this we hit the stores. I was on a mission for shoes and it was fulfilled. Everyone I spoke to in the Delhi office said Agra was the place to go for shoes and they were not lying. Beautiful quality shoes. I will post pictures of my two favorites. Again, it's hard to reconcile my reality with that of the people I saw. I spent 4000 rupees on shoes in an hour. I suppose I can feel good that this money goes back into the local market (the factories are all in Agra) but it's hard to see that level of hardship and not feel pangs of guilt. 

Ok, time to go back to the train station. Let me set the stage for you.

It's been raining all day. And a very special kind of bug is born to celebrate this rain. It's huge, fluttery, and there are millions. 
The electricity for the entire train station is spotty at best and frequently goes off completely and it is pitch dark.
There are beggars (mostly crippled with no legs or very very useless legs) everywhere and they are aggressive. Grabbing at you, following you around, etc.
Did I mention the bugs?

We're waiting for our train to arrive and about 10 minutes before it's scheduled to show up I happen to be talking to a lovely Australian woman who is on the same trip. On a whim, I asked to look at her train ticket because I wanted to see what car she was in. I noticed it was a different train number. I asked her if this was the same ticket from this morning, she said no - she had two. I said "oh shit." Turns out, the guy who had booked the train for us in the office only booked a one way. We raced through the pitch black train station with bugs in our ears and beggars at our feet to try and find an open terminal to buy a ticket for the LAST TRAIN OUT OF AGRA FOR 24 HOURS that was leaving in 10 minutes. I'm not sure if I was sweating from fear or heat. I'm being light about how terrifying it was. At one point, I was literally hyperventilating from all of the bugs that were in my ears, hair, shirt, cleavage, etc. And then when the lights go out and you feel hands grabbing at your legs and you can't see...and the bugs...and...and...well, you can understand why I couldn't breathe.

The good news is we got the ticket and we made it back to Delhi. The bad news is once we arrived our driver wasn't there. When we called him, he said he had sent someone else. That someone else wasn't there. Anywhere. After an hour of searching for him we decided to try and get ourselves a local cab. Because of the rain and the train that had just dumped a ton of passengers to the train station, there weren't a lot of options. We eventually considered ourselves lucky to have an old, unlicensed car that had no working headlights, seatbelts or windshield wipers. We were still traveling with the lovely Australian woman so we offered to take her to her hotel. As we were driving there we quickly realized that by going to this hotel, we were also availing ourselves to a new lot of cabs that would hopefully be in better condition than ours. We made it, we got a new cab, we made our way back to our hotel. On the way there, we hit something but at this point we were all too traumatized to take on any other fucking weird shit so we didn't look. The driver kept going. He said it was some wood. I don't know if that's true but I'll take it. 

I'd do it all again. But I'd bring a better umbrella.

 
 
07 July 2006 @ 04:13 pm
The day of the cow  
Don't get me wrong, I see a lot of cows in India. But yesterday it was an absurdly high number of cows to be found wandering around the roads. I'm not kidding. I probably saw like 30 in the span of as many minutes. 1 cow per minute is a lot of cows. And it's not like I saw them as one giant herd. We're talking random groups of 3-4 cows spaced out over my commute in.

Many.
Many.
Cows.
 
 
03 July 2006 @ 09:26 pm
Terror thy name is Delhi Driving.  

My morning commute had me driving straight into oncoming traffic.

Not to be out done, my evening commute had oncoming traffic driving straight into me (he missed us by a few inches), a car back up into us (he had missed his turn so naturally just wanted to reverse several feet in bumper to bumper traffic to correct the issue) and a bus come within inches of smushing us (literally inches, maybe centimeters).

Does anyone know what happens to a white girl stranded in the streets of Delhi at 9 pm? I don't and I sure as hell hope I never find out. If we got into an accident...I have no cell phone, no working knowlege of the language, no nothing. Scary.

In other news, Indian radio personalities are as annoying as they are in the US and Indian pop music is not a soundtrack I want playing at my funeral. For all of the conversational style overlays on the music (in random bursts of strange english "Do you feel Corporate!" -- I shit you not) it sounds more like commercials than music. For all I know, I could have been listening to a 20 minute ad for Sprite.

 
 
01 July 2006 @ 11:32 am
So far in India I have...  
...seen a cow take a poo on my cab...while we were speeding by it.
...had a massage while listening to hi-energy techno versions of Queen, The Doors, The Offspring and The Knack (ma-ma-ma-MY Sharona)
...enjoyed my first "coffee flavored Indian beverage" (I actually really liked it, it reminded me of a drink my mom and I used to make)
...got a mosquito bite on my forehead and proceeded to spend the rest of the day convinced I had malaria. 
...seen a man living on a street corner, yet had a land phone plugged in somewhere.
...watched in shock and horror as small children were found to be dangling from handlebars of speeding mopeds.
...watched in even more shock and horror as NEWBORN INFANTS were found on the back of motorcycles.
...watched in crazy-where-are-their-parents shock and horror as two children played at the top of a 5 story scaffolding.

plus much much more. Pictures will be posted soon!
 
 
21 June 2006 @ 02:09 pm
Adventures in Baldness  
I didn't wear my wig after the first week. It was hot and itchy and I kept worrying that I would end up with a Donald Trump Style comb-over if I wasn't paying attention to the part. It also made me feel like a sick person. 

I couldn't tie scarves around my head. I tried...but they always just looked weird to me. They also made me feel like a sick person. 

I've never been a hat person though being bald challenged that for me. I found one style of hat that I loved, loved, love. And I bought it in 4 colours and wore them repeatedly. They made me feel like a sick person...but a stylish one. 

I walked around bald. A lot. I didn't feel normal no matter what I did and bald was just more comfortable. I didn't draw in my eyebrows because the colouring was always weird and mascara didn't cut it for me. People smiled at me more because I had no hair. Strangers opened doors for me all the time and nobody honked at me if I jaywalked. 

The "great hair revival of '06" is underway as we speak. My eyebrows are faint little caterpillars getting darker daily. My eyelashes are almost "normal" size (I have very long eyelashes and losing them was particularly painful for my vain self). My hair is filling out more though I still can't tell what colour it is. I think (I hope not) it may be coming in grey. I'm crossing my fingers. Anyhow, all that said - I now give to you...my adventures in baldness. A photo journal from hair to there.  (LJ folks, sorry it isn't behind a cut but I was having major technical difficulties).



One Month B.B. (Before Bald) One Month B.B. (Before Bald)
2 months A.B. (After Bald) 2 months A.B. (After Bald)
Chemo #3 -- halfway there Chemo #3 -- halfway there. My doctor was impressed at how long my eyebrows hung in for.
Day after Chemo 3 - I was always red as a tomato Day after Chemo 3 - I was always red as a tomato
LAST Chemo! LAST Chemo!
Look Ma, no nose hair! Look Ma, no nose hair!
Grumpy but growing hair Grumpy but starting to growing hair
Fuzzy! Fuzzy as of last night!
 
 
19 June 2006 @ 11:05 pm
 
Last week I went out three nights. This is huge for me and I was feeling really proud of myself.  

The past two years I've barely had the energy or the desire to go out and enjoy life. I've been too sick, too tired, etc, etc. But since the surgery, I've been steadily feeling better and since chemo ended, my energy is coming back in spades. These are Good Things. With that, I've been going out more, seeing friends more, just being more alive. 

Saturday night I went out after a full day of activities. The plan was bowling, then dancing. I knew after bowling I probably wouldn't have a lot left over for dancing and I knew pushing myself meant I would end up sleeping half of the next day away after the week I had already had. A well-meaning friend who wanted me to go tried to talk me in to it. After I said "No, really - I think I need to just go home to bed." she said "That's fine, I didn't expect you to go anyhow." My heart sank into my knees. 

Why does cancer have to turn me into the "stick-in-the-mud friend" that can only be relied upon to not go out and have fun. Why do I need to feel bad about the fact that I wanted to go home and get a good night's sleep rather than push myself to a place I know wouldn't be good for me. And WHY do I need to feel like a loser because my health caused me to be a less social and fun person for several months. 

And why doesn't my friend understand any of that?

I haven't brought this up to her because I feel weird about it all. I feel like I'm being stupid and over sensitive, yet at the same time I feel angry that a friend would say something like that to me as though I haven't just spent the past 5 months in chemotherapy and the past two years in miscellaneous medical drama land. So I'll leave it alone, because I know my friend didn't mean to say something that hurt my feelings. And because I'm not sure I can really accurately explain how it made me feel. And maybe because I don't want to have to justify myself any further in all of this. 

And, as a cop-out, I'll put it in my journal...knowing she never reads it.
 
 
15 June 2006 @ 07:26 pm
I'm going to India!!!!  
I never actually posted about this but back in the middle of my chemo I had the opportunity to go to India. I was actually cleared to go by my doctors and everything (my blood counts were great) but my stupid visa didn't come in time!

But it did come eventually and now another opportunity has come back to go to India -- and John is going too!! We leave on Monday the 26th and we come back two weeks later on the 10th. 

I'm so excited I could pee.
 
 
08 June 2006 @ 07:53 pm
Voila - the new Tattoo :)  
Voila - the new Tattoo :) Snake -- because I am a snake in the Chinese horoscope 
Teal -- for Ovarian Cancer 
Shape -- of the cancer ribbon

What do you think? :)
 
 
06 June 2006 @ 07:43 am
It's spring!  
My hair is in full bloom. It's such a funny thing to watch. I started noticing my arms feeling a little prickly last week and then Saturday, with a casual glance in the mirror, I saw something I haven't seen in months.

EYELASHES!!!!!!! Short little things but visible..and growing rapidly! And my hair is visibly coming in darker. I don't have any spots of just pure scalp anymore.

I can't even correctly convey the excitement I feel at looking in the mirror again.

Oh, and I got a new tattoo.
 
 
25 May 2006 @ 12:20 am
lookin' good..feelin' better?  
So today I finally had the "look good feel better" thing at MGH.

First off, what a serious hook up. I'm talking Chanel blushstick, Aveda lipstick, Clinique concealer - all free! Kick ass!

Anyhow...it was a small group of women. Three with breast cancer and in various stages of treatment and one brain tumor (more on her in a minute). For the breast cancer group, one who was halfway through, one who just started and one who is starting in two weeks.

I could feel the apprehension of the one who was about to start and her relief at being able to ask questions to others. It reminded me so much of the feelings of lost control right before I started treatment. You so desperately want to skip a few chapters and read the part where you have gotten through the bad part and are ok but you can't.

I was (a little bitterly I might add) reminded of the joys of imminent hair loss by the woman who had just started her treatment. She was on the 13th day post chemo (and for all the non-cancer cronies out there, if your treatment involves hair loss the timeframe seems to be a standard 14-21 days before it starts to fall out) so she was waiting, just waiting for her hair to fall out. I remember tugging at my hair every few minutes during those days, wondering when my tug would surprise me with something. I happened to be on the toilet when it did. I will have forever etched in my brain the memory of sitting on the can, staring at a handful of hair and saying "Fuck." It was a devastating moment. It meant my ability to hide what I was going through was about to end. More loss of control, it slips through your fingers just like the hair that can't stay on your head.

When the third woman came in, I was happy. Looking at her, I felt satisfied with a decision I had made early on in my treatment. She was halfway through and (like me) had not lost ALL of her hair. However, unlike me - she had not shaved her head yet (as a reminder, my head got shaved the day after it started falling out). It was like her head was a tub drain and the hair left on it was the stuff that hadn't made it through yet. I don't say this to be mean. It's no bloody wonder these clinics are needed. Chemo sucks.

The last woman was a young, beautiful woman with a brain tumor and my heart almost broke in two for her. I couldn't speak. I didn't want to relate to her with my story of my mom because let's face it, people with brain tumors don't have stories that end well. I hated looking into her face and seeing my mom's hopeful eyes. All I could think about was she will either be dead within a year or (if she's "lucky") live another 5-10 years as a shadow of her former self. I fucking hate cancer.

So I learned...no matter what the happy cosmetologists say...that when you only have 5 eyelashes left between two eyes - mascara just doesn't look good. That filling in my eyebrows only highlighted the fact that I barely had any (in my opinon) and that concealer can't really take away the yellowish/black colour under my eyes. But that's ok...I've had 4 months to get used to looking like this and I can handle it for a bit longer. I did get some fab blush out of the deal.

To the four women I shared the class with: I wish you strength for your treatments, courage in whatever you have to face in the future and all of the love and support you will need in the coming months. You are all beautiful.
 
 
25 May 2006 @ 12:18 am
Ok...  
To anyone who watched the American Idol finale tonight...

Was Clay Aiken always that hot?? DAMN.
 
 
22 May 2006 @ 08:24 pm
Lonely!!  
John (the boyfriend) is in India, he's been there since May 12th and isn't back until this Friday.

I'm lonely, I'm bored and I MISS HIM!!!

Sheesh, this sucks.
 
 
 
 

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